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People like us currently have the following options of solving the problem of their dependence on other people:

1. using care services provided by welfare centers

- a limited number of care hours, granted by means of administrative regulation for several months pursuant to the Social Welfare Act [Polish Ustawa o pomocy społecznej]; payment by the beneficiary – depending on their income and a number of family members sharing the common household. In practice, people who achieve employment income, pay the whole cost of care services. Actually, care services are care services in name only – they consist in technical activities: cleaning, doing shopping. One cannot count on assistance with self-service (getting out of bed, personal hygiene, getting dressed), because the employees are not prepared to be providing this kind of help. There is no possibility of using any calling system in emergency situations (injury, falling off the wheelchair, fainting etc.)

These services are provided by firms winning tenders which are announced by welfare centers and the only one criterion is the price, therefore, the quality of these services leaves a lot to be desired. People employed to help the disabled receive very low remuneration (from 6 to 7 PLN net an hour), therefore, the rotation of workers (most often pensioners), their randomness – no preparation for providing care/assistance services – is frequent. This leaves no space for adjusting the form of help to the actual needs of the disabled.

2. stay in an institution of 24-hour care:

- health care center [ZOL] financed by the National Health Fund [NFZ] and the beneficiary (70 % of the income) or

- nursing home [DPS] – fees are collected from the income of the resident (70 % of their assets), payments of the people who are obliged to maintain and if there are no such persons or their income is too low, the stay is financed from the commune’s budget (a frequent situation, simultaneously there are long queues for nursing homes due to limited budgets of the communes).

Health care centers – a form of inpatient long-term care. Health care centers provide 24-hour health services including treatment, nursing and rehabilitation for people who do not require hospitalization any more, are already diagnosed, the process of surgical treatment is over, who, however, due to their health condition and the level of disability as well as no possibility of functioning in a home environment require constant supervision of professional personnel.

A person suffering from disability caused by e.g. dystrophy who has no possibility of getting some help, can be placed in such an establishment due to the fact that their muscles gradually atrophy and they have increasing problems with self-service (everyday toilet, getting dressed, preparing and eating meals).

It is also relevant for our Association, whose members are mainly women, that, according to the research, women in such establishments more frequently fall victim of violence (verbal, physical, sexual).

Due to underfunding and savings (the economic aspect is the most important one) the personnel in such establishments is constantly reduced, the number of employees is inadequate in relation to the level of necessary help, therefore, the majority of wheelchair users are placed in beds at 6 p.m. and taken out of them at 6 a.m., bath once a week etc., because the carers are not able to help the group of 20 charges in a relatively short time. Among these problems the atmosphere, character of health care centers can be named, for example:

4. Cozy home atmosphere.

.1. Like at mother's.

2. Room with the view of the wall.

3. A bed, a chair, a table...

6. Classicist Palace without colums!

5. Before going to bed all have to watch TV news.

Regardless of the fact whether the center is new (photo 3) or old (photo 1), no one would like to live a half of their lives in a place looking like a combination of an office and a production hall or an old warehouse and share a room with a group of people with a view over a wall (photo 2), participate (photo 5) in round-ups referred to as ceremonies by the personnel of the establishment, be forced to lie in bed 24-hours a day, because there is no sufficient number of employees (photo 1). Anonymity, helplessness, full dependence on strangers, living with random people, who we would not like to share our space with. Additionally, one should consider the opinions of people who have personal experience with the reality of the health care center. Below an authentic relation of a family:

"In the health care center there are residents lying in urine, shit (photo 1), washing is dependent on these physiological aspects, while the rest of the body is not washed, because they are just lying and do not get dirty. Diapers are changed twice a day, eating three times a day and it is not important whether they eat something or not then, drinking 3 times a day, usually after a meal. If they do not drink, it means they are not thirsty. If someone is asking for a drink, it is better not to hear it. Turning to the side after changing the diaper and if the patient can sit, they are set in the sitting position, especially during meals, so that there is no need to feed them. If they cannot sit any more, then they are hanging over the bed… Rehabilitation???? Why???? It is best when they lie in bed though.”

The description is shocking, but clearly defines the level of care provided and the character of stay.

Nursing Homes. The advertises are so beautiful!

7.The sultan's hut.

The character of the stay is equally depressing (photo 14). The existence of an adult is suddenly brought down to the level of a multi-bed room with hospital standard (photo 1, photo 2), kindergarten plays, barracks life (photo 17), dependency on the people treating them as a child who needs to be supervised, admonished and brought up for a substantial amount of money (from 3000 PLN up to 5000 PLN per month and even more).

No disabled person who is socially and professionally active deserves to be placed in such an establishment:

8. Modern minimalist room.

9.The fountain in front of the old mansion!

10. The most opulent cottage with a royal fireplace - addressed to a Polish pensioner .

The harsh reality differs from luxury adverttises and future 'residents' expectations:

12. No problem: you can enliven it with a flower.

11. A wretched room - the real 'heaven'.

13. This corridor is too narrow for any wheelchair user. Just crowl on the ground.

14. It is the whole truth about the Nursing Homes.

15.  Avaialable to a Polish member of the intelligentsia.

Rooms for many people, cold, dehumanized insides. Regardless of whether they are modern (photo 3) or embarrassingly dreary furnished (photo 12), the residents are informed just at the beginning that in this place they are just an object and not a beneficiary of all measures taken. The buildings are not adapted (photos 11 and 13), frequently these are former manors and villas with spiral stairs and the personnel needs to drag the residents upstairs by lifting them in the wheelchair. Dreary, narrow corridors (photo 16) which you cannot or only hardly can drive through in a wheelchair (photo 13), unadjusted bathrooms, no bathrooms in rooms (photo 15).

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18. There is no institution where you can feel like at your own home.

FORMS OF DEINSTITUTIONALISATION - 2014

 

The average number of people living in different centres of care: Nursing Home Care - 106, Home Health Care - 5, Supported Apartments - 4, Comercial Nursing Homes - 24, 

19. A long way to nowhere...

It is an open secret that soporifics or sleep-inducing drugs are given to the residents (in a TV documentary a case of residents being tied to a radiator was shown) and in private establishments there are advanced food savings. High fees are no guarantee of a minimal standard (bath once a week, all additional services need to be paid for, e.g. taking to the terrace), consultations of specialists and diapers are also to be self-provided. The average number of residents in such an establishment proves how huge public health care centers usually are:

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